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The Progressive Aphasia Communication Toolkit (PACT): a strengths‐based approach to multidomain evaluation for intervention

作者:Kimiko Domoto‐Reilly, Leslie Kot, Ashleigh Beales, Brielle C Stark, Tracey Graney, Margaret Pozzebon, Richard Talbot, Jade Cartwright, Aimee Dietz, Mara Steinberg Lowe, Inês Cadório, K E Davies, Cathy Taylor‐Rubin, Petronilla Battista, Ellen McGowan, Simon Grobler, Mirjam Gauch, Katarina L. Haley, Aimee Mooney, Jeanne Gallée, Bárbara Costa Beber, Alessa Hausmann, Lotte Meteyard, Ffion Walker, Maya L Henry, Ingvild Elisabeth Winsnes, Anna Volkmer, M. Caldwell, Elena Herrera, Núria Montagut, Paul K. Crane, Rob J. Fredericksen, Honey I. Hubbard, Connie Nakano, Regina Jokel, Iris Nowenstein, Zoe Ezzes · 发表于:UNC Libraries · 年份:2026 · DOI:10.17615/z1xr-8r14 · 研究领域:Neurobiology of Language and Bilingualism、Traumatic Brain Injury Research、Dementia and Cognitive Impairment Research

INTRODUCTION: Assessments of communication for people living with primary progressive aphasia (PwPPA) remain limited. This work describes the development of a strengths‐based, ecologically valid instrument – the Progressive Aphasia Communication Toolkit (PACT). METHODS: This work consisted of five experiments: two to develop (Experiments 1 and 2) and three to pilot (Experiments 3 to 5) a novel instrument for PPA. Ninety‐five individuals worldwide contributed to this work: 80 researchers and clinicians, nine PwPPA, and six care partners. RESULTS: Experiments 1 and 2 yielded a four‐scale instrument comprising quantitative and qualitative feedback. Experiments 3 to 5 resulted in structural refinement and digitization of the tool, revealed strong PwPPA and care partner acceptance of the PACT, and demonstrated high inter‐rater agreement for general observability (91%) and perceived communication strength (85%). DISCUSSION: Current findings indicate that the PACT provides a holistic profile of communication strengths for PwPPA and can guide clinicians in developing functional therapeutic targets.