The Progressive Aphasia Communication Toolkit (PACT): a strengths‐based approach to multidomain evaluation for intervention

作者：Jeanne Gallée, Jade Cartwright, Maya L. Henry, Aimee Mooney, Brielle C. Stark, Anna Volkmer, Aimee Dietz, Connie Nakano, Petronilla Battista, Ashleigh Beales, Bárbara Costa Beber, Inês Cadório, M. Caldwell, K E Davies, Zoe Ezzes, Mirjam Gauch, Tracey Graney, Simon Grobler, Katarina L. Haley, Alessa Hausmann, Elena Herrera, Honey I. Hubbard, Regina Jokel, Leslie Kot, Mara Steinberg Lowe, Ellen McGowan, Lotte Meteyard, Núria Montagut, Iris Edda Nowenstein, Margaret Pozzebon, Richard Talbot, Cathy Taylor‐Rubin, Ffion Walker, Ingvild Elisabeth Winsnes, Rob J. Fredericksen, Kimiko Domoto‐Reilly, Paul K. Crane · 发表于：Alzheimer s & Dementia Diagnosis Assessment & Disease Monitoring · 年份：2026 · DOI：10.1002/dad2.70329 · 被引用次数：1 · 研究领域：Neurobiology of Language and Bilingualism、Traumatic Brain Injury Research、Stuttering Research and Treatment

INTRODUCTION: Assessments of communication for people living with primary progressive aphasia (PwPPA) remain limited. This work describes the development of a strengths-based, ecologically valid instrument - the Progressive Aphasia Communication Toolkit (PACT). METHODS: This work consisted of five experiments: two to develop (Experiments 1 and 2) and three to pilot (Experiments 3 to 5) a novel instrument for PPA. Ninety-five individuals worldwide contributed to this work: 80 researchers and clinicians, nine PwPPA, and six care partners. RESULTS: Experiments 1 and 2 yielded a four-scale instrument comprising quantitative and qualitative feedback. Experiments 3 to 5 resulted in structural refinement and digitization of the tool, revealed strong PwPPA and care partner acceptance of the PACT, and demonstrated high inter-rater agreement for general observability (91%) and perceived communication strength (85%). DISCUSSION: Current findings indicate that the PACT provides a holistic profile of communication strengths for PwPPA and can guide clinicians in developing functional therapeutic targets. Highlights: Instruments to evaluate communicative competence in PwPPA are centered on diagnosis and impairment.Documentation of communication strengths has direct implications for person-centered care and behavioral intervention.The PACT was developed in partnership with expert clinicians, researchers, PwPPA, and care partners.The PACT captures functional, real-world communication ability ...