Family Caregiver Experiences Coordinating Care of Older Adults

作者：Jennifer L. Wolff, Chanee Fabius, Ming‐Ju Wu, Vicki A. Freedman · 发表于：JAMA Network Open · 年份：2025 · DOI：10.1001/jamanetworkopen.2025.44315 · 被引用次数：5 · 研究领域：Geriatric Care and Nursing Homes、Intergenerational Family Dynamics and Caregiving、Family and Patient Care in Intensive Care Units

Importance: Older adults with disabilities rely on support from family caregivers, medical professionals, and paid caregivers. Unlike team-based interprofessional care, coordination of care work is not protocolized or well understood. Objective: To describe family caregiver experiences coordinating care with medical professionals, other family caregivers, and paid caregivers. Design, Setting, and Participants: This cross-sectional analysis of the 2023 National Health and Aging Trends Study and the linked National Study of Caregiving included data on 2811 family and unpaid caregivers to community-living adults aged 65 years or older with disabilities. Exposure: Caregiver characteristics, caregiving circumstances, negative consequences, supportive services use, and, for medical professionals, frequency of interactions and types of communication behaviors. Main Outcomes and Measures: Adapted relational coordination index (RCI; range, 1-5; greater values indicate higher relational coordination) reflecting frequency of any communication and problem-solving communication, as well as shared goals, shared knowledge, and mutual respect with medical professionals, paid caregivers, and other family caregivers. Results: Among a weighted sample of 2811 family and unpaid caregivers (1633 women [63.4%]; 1044 aged ≥65 years [41.5%]), most (2448 [87.6%]) engaged in care work that involved medical professionals (2061 [76.4%]), other family caregivers (1791 [62.8%]), or paid caregivers (822 [23...