Engaging Chinese and Korean American communities in dementia research: A journey of inclusivity and partnership

作者：Jing Wang, Xiang Qi, Mary Mittelman, Eunjung Ko, Yaolin Pei, I tek Leong, SungJi Park, Katherine Wang, Weiyu Mao, Cynthia Fuchs Epstein, Bei Wu · 发表于：Alzheimer s & Dementia · 年份：2025 · DOI：10.1002/alz.70664 · 被引用次数：5 · 研究领域：Dementia and Cognitive Impairment Research、Mental Health and Patient Involvement、Social Media in Health Education

INTRODUCTION: The New York University Caregiver Intervention plus Enhanced Support Project is a randomized controlled trial of a family-based psychosocial intervention to enhance social support and reduce cardiometabolic risk for Chinese and Korean American dementia caregivers, using culturally tailored recruitment strategies. METHODS: We reviewed reflections from research staff, weekly meeting minutes, debriefing sessions, and progress reports, to identify key challenges and approaches to engaging participants. RESULTS: Key challenges included reluctance to involve family members, dementia stigma, and resistance to involving family. In response, we engaged online communities, partnered with local organizations, participated in events, and adapted recruitment messages to cultural norms. For the Chinese community, we focused on practical skills while for the Korean community, we emphasized caregiving strategies and the personal/social benefits of participation, reducing rejection rates. DISCUSSION: Our findings underscore the importance of culturally tailored recruitment strategies in dementia research. Respectful, sensitive, and culturally informed approaches can significantly enhance engagement and participation. HIGHLIGHTS: Culturally adapted recruitment strategies improve study engagement with Chinese and Korean American dementia caregivers. Community partnerships with local social services agencies are essential for recruitment success. Culturally relevant social media ap...