Enabling secure and self determined health data sharing and consent management

作者：Cindy Welzel, Max Ostermann, H. Jeff Smith, Timo Minssen, Toralf Kirsten, Stephen Gilbert · 发表于：npj Digital Medicine · 年份：2025 · DOI：10.1038/s41746-025-01945-z · 被引用次数：12 · 研究领域：Privacy-Preserving Technologies in Data、Ethics in Clinical Research、Privacy, Security, and Data Protection

Digital health tools generate vast sensitive data not only in clinic but also from apps and wearables. Effective consent management builds trust, increasing willingness for data sharing. We present a novel early-stage conceptual framework, reviewing technologies like blockchain, self-sovereign identity, and de-identified tokens for integration into a consent management system to enable tracking of consent and data utilization. This balances data access and privacy to encourage data sharing and improve healthcare.