Living with a permanent ostomy: a descriptive phenomenological study on postsurgical experiences in patients with colorectal cancer

作者：Zhang-Yun Tan, Lili Jiang, Anqing Lu, Xiaodong He, Yan Zuo, Jie Yang · 发表于：BMJ Open · 年份：2024 · DOI：10.1136/bmjopen-2024-087959 · 被引用次数：22 · 研究领域：Stoma care and complications、Cancer survivorship and care、Colorectal Cancer Surgical Treatments

OBJECTIVES: To explore the postsurgery lived experiences of patients with colorectal cancer with a permanent ostomy for informing initiatives to improve patient care and future quantitative research. DESIGN: A descriptive qualitative phenomenological study. SETTING: We conducted this study in the Colorectal Cancer Division at the Cancer Center of West China Hospital, Sichuan University, a premier institution renowned for its comprehensive cancer care and research. PARTICIPANTS: 12 patients who had undergone surgeries for colorectal cancer with a permanent ostomy. RESULTS: Our interviews revealed profound adjustments in the lives of colorectal cancer survivors living with permanent ostomies. Participants articulated a transition to a 'new normal', characterised by extensive daily life adjustments, psychological adaptation and ongoing management challenges. Key themes identified included the adaptation to a reshaped daily routine and altered perceptions of quality of life. Many faced substantial challenges in stoma care, requiring significant learning and adaptation. Psychological adaptations were marked by a redefinition of body autonomy and personal identity, alongside a recalibration of social interactions and privacy. The need for robust professional guidance and a comprehensive social support system was universally emphasised. CONCLUSIONS: Patients with colorectal cancer with permanent ostomies navigate significant changes in their lives postsurgery, undertaking a complex ...