Validating performance status and activities of daily living assessment tools for Chinese palliative care in a cancer setting: A cross-cultural psychometric study

作者：Yunyun Dai, Jinfeng Ding, Barbara A Daveson, Yongyi Chen, Alanna M Connolly, Claire E. Johnson · 发表于：Asia-Pacific Journal of Oncology Nursing · 年份：2024 · DOI：10.1016/j.apjon.2024.100613 · 被引用次数：4 · 研究领域：Palliative Care and End-of-Life Issues、Cancer survivorship and care、Frailty in Older Adults

Objective National approaches to the routine assessment of palliative care patients improve patient outcomes. However, validated tools and a national methodology for this are lacking in Mainland China. The Australian Palliative Care Outcomes Collaboration (PCOC) model is a well-established national program aimed at improving the quality of palliative care based on point-of-care outcomes assessment. This study aimed to culturally adapt and validate two measures used in PCOC (Australia-modified Karnofsky Performance Status [AKPS], Resource Utilization Groups - Activities of Daily Living [RUG-ADL]) in the Chinese context. Methods A cross-cultural adaptation and validation study involving forward and backward translation methods, cognitive interviewing, and psychometric testing. Results Two minor adjustments were made to the scoring instructions for the RUG-ADL, and the AKPS remained unchanged. Twenty-two clinicians participated in psychometric testing, completing 363 paired assessments on 135 inpatients. The correlations between AKPS and the Barthel index (BI) for activities of daily living ( r = 0.77, P < 0.001), AKPS and RUG-ADL ( r = −0.82, P < 0.001), RUG-ADL and BI ( r = −0.67 to −0.76) demonstrated good concurrent validity for both the AKPS and the RUG-ADL. The inter-rater reliability for AKPS ( k = 0.63) and RUG-ADL were substantial and moderate ( k = 0.51–0.56), respectively. The RUG-ADL also showed good internal consistency (Cronbach's alpha = 0.92). Both tools were abl...