Service users perspectives on psychosis-risk terminology: An Italian study on labeling terms preferences and stigma

作者：Tommaso Boldrini, Gabriele Lo Buglio, Arianna Schiano Lomoriello, Alice Barsanti, Elena Cordova, Francesca De Salve, Alessandro Gennaro, Paolo Girardi, Renan Göksal, Naoyuki Katagiri, Sung‐Wan Kim, Suzie Lavoie, Vittorio Lingiardi, Lara Malvini, Patrick D. McGorry, Alessandro Miola, Barnaby Nelson, Osmano Oasi, Mauro Percudani, Claudio Placenti, Maria Pontillo, Chiara Rossi, Silvia Salcuni, Tsutomu Takahashi, Stefano Vicari, Andrea Polari · 发表于：Asian Journal of Psychiatry · 年份：2024 · DOI：10.1016/j.ajp.2024.104254 · 被引用次数：9 · 研究领域：Schizophrenia research and treatment、Mental Health and Psychiatry、Mental Health Treatment and Access

The current range of labeling terms—at-risk mental state (ARMS), ultra-high risk for psychosis (UHR), and attenuated psychotic syndrome (APS)—used to refer to the psychosis-risk concept is varied, and their acceptability and potential stigma are not well understood. By involving Italian youth with lived experience of mental ill-health, we aimed to generate new labeling terms for psychosis-risk, and to evaluate literacy, attitudes, and preferences regarding these and the existing terms. Additionally, we investigated opinions of disclosure of the at-risk concept in clinical practice. Through a dual-moderator focus group, novel diagnostic terms were coined for the at-risk concept: psychosis proneness (PP), change of personal reality (CPR), and hints of subjectivity dysregulation (HSD). A specifically designed questionnaire was then completed by 47 help-seeking youths, 60 relatives, and 61 clinicians to test newly generated and already established at-risk terms. Literacy on already established terms was significantly lower among youth (mean= 42 %) and relatives (mean= 38 %). ARMS was the preferred and least stigmatizing term among young people and clinicians. UHR was considered the most stigmatizing label. Among newly generated terms, CPR was the least stigmatizing and most informative. Disclosure of at-risk terminology was generally preferred after establishing a trusting clinician-patient relationship. Findings support ARMS as a useful and acceptable term in clinical practice w...