The Right to Rehabilitation for People With Dementia: A Codesign Approach to Barriers and Solutions

作者：Natasha Ann Layton, Catherine Devanny, Keith Hill, Kate Swaffer, Grant M. Russell, Lee‐Fay Low, Den‐Ching A. Lee, Monica Cations, Helen Skouteris, Claire M. C. O’Connor, Taya Annabelle Collyer, Bárbara Barbosa Neves, Nadine E. Andrew, Terry Peter Haines, Velandai K. Srikanth, Alan R Petersen, Michele L. Callisaya · 发表于：Health Expectations · 年份：2024 · DOI：10.1111/hex.70036 · 被引用次数：18 · 研究领域：Dementia and Cognitive Impairment Research、Geriatric Care and Nursing Homes、Healthcare innovation and challenges

INTRODUCTION: People with dementia of all ages have a human right to equal access to quality health care. Despite evidence regarding its effectiveness, many people living with dementia are unable to access rehabilitation for promoting function and quality of life. Conducted in Australia, this study was designed to (1) explore barriers to access to dementia rehabilitation and (2) identify solutions that improve access to rehabilitation. METHODS: People living with dementia (n = 5) and care partners (n = 8) and health professionals (n = 13) were recruited nationally. Experience-based codesign across three virtual workshops was used to understand barriers and design solutions to improve access to rehabilitation treatments. Socio-ecological analyses, using the Levesque Access to Health care framework, were applied to findings regarding barriers and to aid selection of solutions. RESULTS: There was high attendance (92.3%) across the three workshops. Barriers were identified at a user level (including lack of knowledge, transport, cost and difficulty navigating the health, aged care and disability sectors) and health service level (including health professional low dementia knowledge and negative attitudes, inequitable funding models and non-existent or fragmented services). Solutions focused on widespread dementia education and training, including ensuring that people with dementia and their care partners know about rehabilitation therapies and that health professionals, aged care...