Managing fatigue transdiagnostically: a qualitative study among people with chronic conditions on optimizing daily activity

作者：Ioulia Barakou, Katie L. Hackett, Ulric Sena Abonie, Florentina J. Hettinga, Tracy Finch · 发表于：Disability and Rehabilitation · 年份：2024 · DOI：10.1080/09638288.2024.2393798 · 被引用次数：10 · 研究领域：Amyotrophic Lateral Sclerosis Research、Fibromyalgia and Chronic Fatigue Syndrome Research、Chronic Obstructive Pulmonary Disease (COPD) Research

PURPOSE: To explore fatigue and physical activity behavior experiences and management, with an emphasis on activity pacing among adults with chronic conditions. MATERIALS AND METHODS: Semi-structured interviews were conducted with 15 adults with chronic conditions and the symptoms of chronic fatigue who had either received or not received fatigue management advice. Interviews were audio-recorded and transcribed verbatim, then analyzed using reflexive thematic analysis. RESULTS: Participants reported barriers to fatigue management such as overactivity, mental health issues, and workplace challenges. Additionally, they highlighted rest, restful activities, and supportive social environment as facilitators of effective fatigue management, along with the importance of nutrition and physical activity. In some cases, there were conflicting experiences with social environment and physical activity. Activity pacing was identified as a promising solution and participants recommended several strategies for future consideration. CONCLUSIONS: Participants identified fatigue as a significant denominator in daily living and recognized the importance of activity pacing in fatigue management. Through reflective processes, they uncovered crucial factors for effective fatigue management, highlighting a multidimensional, interdisciplinary, and tailored approach to activity pacing as a promising solution. Further research should explore clinicians' perspectives of a multidimensional fatigue mana...