Which Educational Topics and Smartphone App Functions Are Prioritized by US Patients With Rheumatic and Musculoskeletal Diseases? A Mixed-Methods Study

作者：W. Benjamin Nowell, Kelly Gavigan, Kimberly B. Garza, Rónán O’Beirne, Monika M. Safford, Michael George, Alexis Ogdie, Jessica A. Walsh, Maria I. Danila, Shilpa Venkatachalam, Laura Stradford, Esteban Rivera, Jeffrey R. Curtis · 发表于：The Journal of Rheumatology · 年份：2024 · DOI：10.3899/jrheum.2023-1021 · 被引用次数：3 · 研究领域：Rheumatoid Arthritis Research and Therapies、Osteoarthritis Treatment and Mechanisms、Autoimmune and Inflammatory Disorders Research

OBJECTIVE: We sought to identify (1) what types of information US adults with rheumatic and musculoskeletal diseases (RMD) perceive as most important to know about their disease, and (2) what functions they would use in an RMD-specific smartphone app. METHODS: Nominal groups with patients with RMD were conducted using online tools to generate a list of needed educational topics. Based on nominal group results, a survey with final educational items was administered online, along with questions about desired functions of a smartphone app for RMD and wearable use, to patients within a large community rheumatology practice-based research network and the PatientSpot registry. Chi-square tests and multivariate regression models were used to determine differences in priorities between groups of respondents with rheumatic inflammatory conditions (RICs) and osteoarthritis (OA), and possible associations. RESULTS: At least 80% of respondents considered finding a rheumatologist, understanding tests and medications, and quickly recognizing and communicating symptoms to doctors as extremely important educational topics. The highest-ranked topic for both RIC and OA groups was "knowing when the medication is not working." The app functions that most respondents considered useful were viewing laboratory results, recording symptoms to share with their rheumatology provider, and recording symptoms (eg, pain, fatigue) or disease flares for health tracking over time. Approximately one-third of r...