The National Cancer Database Conforms to the Standardized Framework for Registry and Data Quality

作者：Bryan E. Palis, Lauren M. Janczewski, Amanda E. Browner, Joseph H. Cotler, Letícia Nogueira, Lisa Carolyn Richardson, Vicki B. Benard, Reda J. Wilson, Nadine Walker, Ryan M. McCabe, Daniel J. Boffa, Heidi Nelson · 发表于：Annals of Surgical Oncology · 年份：2024 · DOI：10.1245/s10434-024-15393-8 · 被引用次数：70 · 研究领域：Global Cancer Incidence and Screening、Medical Coding and Health Information、Data Quality and Management

BACKGROUND: Standardization of procedures for data abstraction by cancer registries is fundamental for cancer surveillance, clinical and policy decision-making, hospital benchmarking, and research efforts. The objective of the current study was to evaluate adherence to the four components (completeness, comparability, timeliness, and validity) defined by Bray and Parkin that determine registries' ability to carry out these activities to the hospital-based National Cancer Database (NCDB). METHODS: Tbis study used data from U.S. Cancer Statistics, the official federal cancer statistics and joint effort between the Centers for Disease Control and Prevention (CDC) and the National Cancer Institute (NCI), which includes data from National Program of Cancer Registries (NPCR) and Surveillance, Epidemiology, and End Results (SEER) to evaluate NCDB completeness between 2016 and 2020. The study evaluated comparability of case identification and coding procedures. It used Commission on Cancer (CoC) standards from 2022 to assess timeliness and validity. RESULTS: Completeness was demonstrated with a total of 6,828,507 cases identified within the NCDB, representing 73.7% of all cancer cases nationwide. Comparability was followed using standardized and international guidelines on coding and classification procedures. For timeliness, hospital compliance with timely data submission was 92.7%. Validity criteria for re-abstracting, recording, and reliability procedures across hospitals demonstr...