Seeking sufficient and appropriate care during the first year after spinal cord injury: a qualitative study

作者：Anne M. Bryden, Brian Gran · 发表于：Spinal Cord · 年份：2024 · DOI：10.1038/s41393-024-00974-x · 被引用次数：12 · 研究领域：Spinal Cord Injury Research、Traumatic Brain Injury Research、Stroke Rehabilitation and Recovery

STUDY DESIGN: Longitudinal qualitative study, based on a constructivist grounded theory and transformative approach. OBJECTIVES: This study investigated experiences of individuals with spinal cord injury (SCI) while navigating rehabilitation, resources for recovery, and community reintegration during the first year after injury. SETTING: An acute inpatient rehabilitation facility in the Midwest United States. METHODS: In-depth, semi-structured interviews were conducted with 20 individuals with newly-acquired SCI. Interviews were conducted approximately every other month for one year, beginning at acute inpatient rehabilitation. Data were analyzed and interpreted using a constructivist grounded theory approach and transformative paradigm, which examines power and social structures within and across institutions and gives voice to people at risk for marginalization. RESULTS: Participants experienced variable post-injury trajectories, with an average of four transitions within and across healthcare institutions in the first three months. Half of the cohort was discharged to a skilled nursing facility (SNF). Emergent themes included discharge (un)readiness; length of stay uncertainty and insurance impacts; challenges choosing a SNF including time-sensitive decisions; and early cessation of therapy in the SNF. Participants experienced resource navigation challenges such as communication/information access barriers and contending with many concerns at once. CONCLUSIONS: The experie...