Patient Experiences in early Huntington’s Disease - Qualitative Research to Inform Development of a Patient-Reported Instrument of Everyday Functioning (P3-11.003)

作者：J Billet, Adele Levine, Jason Johannesen, T Lovell, Alissa Rams, Emily Gusse, Stefan Cano, Aaron Koenig · 发表于：Neurology · 年份：2022 · DOI：10.1212/wnl.98.18_supplement.2666 · 被引用次数：3 · 研究领域：Genetic Neurodegenerative Diseases

To describe findings from concept elicitation (CE) and cognitive debriefing (CD) interviews and inform the development of a novel patient-reported outcome (PRO) instrument, “Huntington’s Disease Everyday Functioning (Hi-DEF).”