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Systematic symptom management in the IMPACT Consortium: rationale and design for 3 effectiveness-implementation trials

作者:Ashley Wilder Smith, Lisa DiMartino, Sofia F. Garcia, Sandra A. Mitchell, Kathryn J. Ruddy, Justin Dean Smith, Sandra L. Wong, September Cahue, David F Cella, Roxanne E. Jensen, Michael J. Hassett, Christine Hodgdon, Anna Kroner, Raymond Uyiosa Osarogiagbon, Jennifer R. Popovic, Kimberly K. Richardson, Deborah Schrag, Andrea Lynne Cheville, David F Cella, Andrea Lynne Cheville, Michael J. Hassett, Raymond Uyiosa Osarogiagbon, Deborah Schrag, Sandra L. Wong, Barbara L Kroner, Ashley Wilder Smith, Lisa DiMartino, Sofia F. Garcia, Joan M. Griffin, Roxanne E. Jensen, Sandra A. Mitchell, Kathryn J. Ruddy, Justin Dean Smith, Betina R. Yanez, Jessica J. Bian, Don Steven Dizon, Hannah W Hazard-Jenkins, Mary-Anne Ardini, Paige Ahrens, Jessica D. Austin, Fiona Barrett, Michael Bass, Megan H. Begnoche, September Cahue, Kimberly Caron, Linda L. Chlan, Ava Coughlin, Christine Marie Cronin, Samira L. Dias, Nicolas Farisiv, Anne Marie Flores, Martha Garcia, Karla Hemming, Jeph S. Herrin, Christine Hodgdon, Sheetal Mehta Kircher, Kurt Kroenke, Veronica M. S. Lam, Nicola Lancki, Quan H Mai, Jennifer A. Mallow, Nadine J. McCleary, Wynne E. Norton, Mary Lillian O'Connor, Deirdre R. Pachman, Loretta Pearsonil, Frank J. Penedo, Jewel Podratz, Jennifer R. Popovic, Liliana Preiss, Parvez Rahman, Sarah A. Redmond, James Harry Reich, Joshua E. Richardson, Kimberly K. Richardson, Jennifer L. Ridgeway, Lila J. Finney Rutten, Karen Schaepe, Denise M. Scholtens, Tiana Poirier-Shelton, Philip Silberman, Jaclyn Simpson, Laura Tasker, Nathan K. Tesch, Cindy Tofthagen, Angela C. Tramontano, Benjamin D. Tyndall, Hajime Uno, Firas Wehbe, Bryan Jeffrey Weiner · 发表于:JNCI Cancer Spectrum · 年份:2023 · DOI:10.1093/jncics/pkad073 · 被引用次数:19 · 研究领域:Health Policy Implementation Science、Childhood Cancer Survivors' Quality of Life、Delphi Technique in Research

Cancer and its treatment produce deleterious symptoms across the phases of care. Poorly controlled symptoms negatively affect quality of life and result in increased health-care needs and hospitalization. The Improving the Management of symPtoms during And following Cancer Treatment (IMPACT) Consortium was created to develop 3 large-scale, systematic symptom management systems, deployed through electronic health record platforms, and to test them in pragmatic, randomized, hybrid effectiveness and implementation trials. Here, we describe the IMPACT Consortium's conceptual framework, its organizational components, and plans for evaluation. The study designs and lessons learned are highlighted in the context of disruptions related to the COVID-19 pandemic.