Longitudinal Analysis of Caregiver Burden in Head and Neck Cancer

作者：Lauren D. Kudrick, Khalil Baddour, Richard Wu, Mark A. Fadel, Vusala Snyder, Aakriti Neopaney, Teresa Hagan Thomas, Lindsay M. Sabik, Marci L. Nilsen, Jonas T. Johnson, Robert L. Ferris, Seyed M. Nouraie, Richard W. Hass, Leila J. Mady · 发表于：JAMA Otolaryngology–Head & Neck Surgery · 年份：2023 · DOI：10.1001/jamaoto.2023.1283 · 被引用次数：24 · 研究领域：Cancer survivorship and care、Family Support in Illness、Childhood Cancer Survivors' Quality of Life

Importance: Despite the critical role of caregivers in head and neck cancer (HNC), there is limited literature on caregiver burden (CGB) and its evolution over treatment. Research is needed to address evidence gaps that exist in understanding the causal pathways between caregiving and treatment outcomes. Objective: To evaluate the prevalence of and identify risk factors for CGB in HNC survivorship. Design, Setting, and Participants: This longitudinal prospective cohort study took place at the University of Pittsburgh Medical Center. Dyads of treatment-naive patients with HNC and their caregivers were recruited between October 2019 and December 2020. Eligible patient-caregiver dyads were 18 years or older and fluent in English. Patients undergoing definitive treatment identified a caregiver as the primary, nonprofessional, nonpaid person who provided the most assistance to them. Among 100 eligible dyadic participants, 2 caregivers declined participation, resulting in 96 enrolled participants. Data were analyzed from September 2021 through October 2022. Main Outcomes and Measures: Participants were surveyed at diagnosis, 3 months postdiagnosis, and 6 months postdiagnosis. Caregiver burden was evaluated with the 19-item Social Support Survey (scored 0-100, with higher scores indicating more support), Caregiver Reaction Assessment (CRA; scored 0-5, with higher scores on 4 subscales [disrupted schedule, financial problems, lack of family support, and health problems] indicating ne...