Exploring the experiences of healthcare professionals in South Africa and Uganda around communicating with children about life-threatening conditions: a workshop-based qualitative study to inform the adaptation of communication frameworks for use in these settings

作者：Elizabeth Rapa, Jeffrey R. Hanna, Teresa Pollard, Stephanie Santos-Paulo, Yasmin Gogay, Julia Ambler, Elizabeth Namukwaya, David Kavuma, Elizabeth Nabirye, Ruth Mary Kemigisha, Juliet Namyeso, T. Brand, Louise Walker, Beverley Neethling, Julia Downing, Sue Ziébland, Alan Stein, Louise Dalton · 发表于：BMJ Open · 年份：2023 · DOI：10.1136/bmjopen-2022-064741 · 被引用次数：10 · 研究领域：Ethics and Legal Issues in Pediatric Healthcare、Childhood Cancer Survivors' Quality of Life、Patient-Provider Communication in Healthcare

OBJECTIVES: This study aimed to explore how published communication frameworks could be amended to ensure applicability and cultural appropriateness for professionals to support family-centred conversations by investigating' healthcare professionals' (1) experiences of providing support to families when a caregiver or a dependent child (<18 years old) has a life-threatening condition, (2) perceived challenges for caregivers and healthcare professionals in communicating with children about illness, (3) perceptions of how clinicians could be equipped to facilitate conversations between caregivers and children about an adult or the child's own life-threatening condition and (4) suggestions for amendments to previously published guidelines to ensure cultural relevance in South Africa and Uganda. DESIGN: A qualitative study involving two 2-day workshops with embedded focus group discussions, break out rooms and consensus discussions. SETTING: Health and social care and third sector organisations in South Africa and Uganda. PARTICIPANTS: Thirty-two professionals providing care to families affected by life-threatening conditions in South Africa or Uganda who were aged 18 years or older and able to converse in English. RESULTS: Participants identified obstacles to having conversations with caregivers about children and to telling children about serious illness during consultations. These included patients' beliefs about illness, medicine and death, language barriers between families ...