Pediatric to Adult Transition Literature: Scoping Review and Rheumatology Research Prioritization Survey Results

作者：Nicole Bitencourt, Erica Lawson, J. M. Bridges, Kristine Carandang, Ela Chintagunta, Peter Chiraseveenuprapund, Kimberly DeQuattro, Y. Ingrid Goh, Tzielan Lee, Katharine Moore, Rosemary Peterson, Jordan E. Roberts, Tova Ronis, Rebecca E. Sadun, Emily A. Smitherman, Elizabeth Stringer, Patience H. White, Joyce C. Chang · 发表于：The Journal of Rheumatology · 年份：2022 · DOI：10.3899/jrheum.220262 · 被引用次数：14 · 研究领域：Adolescent and Pediatric Healthcare、Eosinophilic Esophagitis、Childhood Cancer Survivors' Quality of Life

The transition from pediatric to adult care is the focus of growing research. It is important to identify how to direct future research efforts for maximum effect. Our goals were to perform a scoping review of the transition literature, highlight gaps in transition research, and offer stakeholder guidance on the importance and feasibility of research questions designed to fill identified gaps. The transition literature on rheumatic diseases and other common pediatric-onset chronic diseases was grouped and summarized. Based on the findings, a survey was developed and disseminated to pediatric rheumatologists and young adults with rheumatic diseases as well as their caregivers. The transitional care needs of patients, healthcare teams, and caregivers is well described in the literature. While various transition readiness scales exist, no longitudinal posttransfer study confirms their predictive validity. Multiple outcome measures are used alone or in combination to define a successful transition or intervention. Multimodal interventions are most effective at improving transition-related outcomes. How broader health policy affects transition is poorly studied. Research questions that ranked highest for importance and feasibility included those related to identifying and tracking persons with psychosocial vulnerabilities or other risk factors for poor outcomes. Interventions surrounding improving self-efficacy and health literacy were also ranked highly. In contrast to healthcare...