Principles and philosophies for speech and language therapists working with people with primary progressive aphasia: an international expert consensus

作者：Anna Volkmer, Jade Cartwright, Leanne Ruggero, Ashleigh Beales, Jeanne Gallée, Stephanie M. Grasso, Maya L. Henry, Regina Jokel, Jacqueline Kindell, Rebecca Khayum, Margaret Pozzebon, Elizabeth Rochon, Cathleen Taylor‐Rubin, R. Townsend, Ffion Walker, Suzanne Beeke, Deborah Hersh · 发表于：Disability and Rehabilitation · 年份：2022 · DOI：10.1080/09638288.2022.2051080 · 被引用次数：70 · 研究领域：Neurobiology of Language and Bilingualism、Dementia and Cognitive Impairment Research、Occupational Therapy Practice and Research

PURPOSE: Primary progressive aphasia (PPA) is a language-led dementia associated with Alzheimer's pathology and fronto-temporal lobar degeneration. Multiple tailored speech and language interventions have been developed for people with PPA. Speech and language therapists/speech-language pathologists (SLT/Ps) report lacking confidence in identifying the most pertinent interventions options relevant to their clients living with PPA during their illness trajectory. MATERIALS AND METHODS: The aim of this study was to establish a consensus amongst 15 clinical-academic SLT/Ps on best practice in selection and delivery of speech and language therapy interventions for people with PPA. An online nominal group technique (NGT) and consequent focus group session were held. NGT rankings were aggregated and focus groups video recorded, transcribed, and reflexive thematic analysis undertaken. RESULTS: The results of the NGT identified 17 items. Two main themes and seven further subthemes were identified in the focus groups. The main themes comprised (1) philosophy of person-centredness and (2) complexity. The seven subthemes were knowing people deeply, preventing disasters, practical issues, professional development, connectedness, barriers and limitations, and peer support and mentoring towards a shared understanding. CONCLUSIONS: This study describes the philosophy of expert practice and outlines a set of best practice principles when working with people with PPA.Implications for rehabili...