Patients' with chronic kidney disease and their relatives' perspectives on advance care planning: A meta‐ethnography

作者：Christina Egmose Frandsen, Hans Dieperink, Karen Detering, Hanne Agerskov · 发表于：Journal of Renal Care · 年份：2021 · DOI：10.1111/jorc.12399 · 被引用次数：17 · 研究领域：Dialysis and Renal Disease Management、Palliative Care and End-of-Life Issues、Renal Transplantation Outcomes and Treatments

INTRODUCTION: Advance care planning is a process that supports adults of any age and stage of illness in understanding and sharing their values, life goals, and preferences regarding medical care. Chronic kidney disease is a progressive and lifelong disease. Close relatives often represent patients' most important support. Advance care planning is recommended to be a continuous part of a person's ongoing treatment and is not solely related to end-of-life care. However, no studies have focused on advanced care planning for patients with chronic kidney disease earlier than the onset of a terminal illness. AIM: The aim is to describe experiences of and perspectives on advance care planning among patients with chronic kidney disease and their close relatives. METHODS: We conducted a meta-ethnography of studies that used individual, dyad, and focus group interviews. We searched five electronic databases: PubMed, Cinahl, Embase, PsycINFO, and Scopus and reference lists of relevant articles. RESULTS: Seven articles were included. Participants had a need for advance care planning to make shared decisions about treatment and everyday life. The responsibility for initiating advance care planning lay with the healthcare professionals. Differences between advance care planning goals among patients, relatives, and healthcare professionals complicated the advance care planning process. A focus on day-to-day care at the expense of focusing on advance care planning gave an impression of a la...