Layperson Views about the Design and Evaluation of Decision Aids: A Public Deliberation

作者：Peter H. Schwartz, Kieran C. O’Doherty, Colene Bentley, Karen Schmidt, Michael Burgess · 发表于：Medical Decision Making · 年份：2021 · DOI：10.1177/0272989x21998980 · 被引用次数：22 · 研究领域：Patient-Provider Communication in Healthcare、Colorectal Cancer Screening and Detection、Health Systems, Economic Evaluations, Quality of Life

PURPOSE: We carried out the first public deliberation to elicit lay input regarding guidelines for the design and evaluation of decision aids, focusing on the example of colorectal ("colon") cancer screening. METHODS: A random, demographically stratified sample of 28 laypeople convened for 4 days, during which they were informed about key issues regarding colon cancer, screening tests, risk communication, and decision aids. Participants then deliberated in small and large group sessions about the following: 1) What information should be included in all decision aids for colon screening? 2) What risk information should be in a decision aid and how should risk information be presented? 3) What makes a screening decision a good one (reasonable or legitimate)? 4) What makes a decision aid and the advice it provides trustworthy? With the help of a trained facilitator, the deliberants formulated recommendations, and a vote was held on each to identify support and alternative views. RESULTS: Twenty-one recommendations ("deliberative conclusions") were strongly supported. Some conclusions matched current recommendations, such as that decision aids should be available for use with and without providers present (conclusions 1-4) and should support informed choice (conclusion 9). Some conclusions differed from current recommendations, at least in emphasis-for example, that decision aids should disclose cost of screening (conclusion 11) and should be kept simple and understandable (concl...