Carers Create: Carer perspectives of a creative programme for people with dementia and their carers on the relationship within the (carer and cared-for) dyad

作者：Ann Skingley, Diane Billam, David Clarke, Rona Hodges, Isabella Jobson, Roger Jobson, Jacky Moore, Trish Vella-Burrows, Pamela Vickers, Jo Walker, Helen West · 发表于：Dementia · 年份：2020 · DOI：10.1177/1471301220933121 · 被引用次数：11 · 研究领域：Nursing care and research、Dementia and Cognitive Impairment Research、History, Culture, and Society

INTRODUCTION: Relationships between people with dementia and their carers can prove challenging over the trajectory of the disease. Interventions with a potential to address this include arts and music-based activities. This research project aimed to evaluate a community engagement programme (Carers Create) where both people with dementia and their carers participate together in singing and other activities. A specific focus was on the impact of the sessions on the dyadic relationship. METHODS: = 16) facilitated by members of a local U3A (University of the Third Age) who were trained and supported by university researchers. Recorded conversations were transcribed and analysed using a three-stage coding and thematic development technique. RESULTS: Four overarching themes were identified from the discourse: remembering the positive qualities of the cared-for, the physical and emotional demands of caring, Carers Create as a shared, beneficial activity and the enduring value of Carers Create. CONCLUSION: Carers found the sessions to positively influence the relationship with the person they cared for through offering some relief from the day-to-day pressures of caring and, in some cases, restoring elements of a previously strong relationship. Crucial to the experience was the fact that the sessions included both carer and cared-for, offering activities to do together, and that they took place within a group, thereby offering a degree of mutual support. In addition, some carers we...