Assessment of patient experiences following total sacrectomy for primary malignant sacral tumors: A qualitative study

作者：Yifei Wang, Weiming Liang, Shan Qu, Yidan Zhang, Zhiye Du, Tao Ji, Huayi Qu, Richard Görlick, Wei Guo · 发表于：Journal of Surgical Oncology · 年份：2019 · DOI：10.1002/jso.25756 · 被引用次数：9 · 研究领域：Pelvic and Acetabular Injuries、Bone Tumor Diagnosis and Treatments、Colorectal Cancer Surgical Treatments

BACKGROUND AND OBJECTIVES: Few reports have investigated patient experiences following total en bloc sacrectomy. The aims of this study were to obtain a deeper understanding of patients' personal experiences, needs, and satisfaction with the treatment to reveal areas in which perioperative and long-term patient care can be improved. METHODS: A qualitative design was applied to examine patient experiences and supportive care needs. Patients treated between 2007 and 2017 were identified from our institutional database. RESULTS: A total of 28 survivors were interviewed (13 females, age 13-75 years). Eight themes were identified: the effect of surgery on patients' (a) daily lives, (b) social activities, (c) work or school activities, (d) and family lives; (e) acceptance of ostomy surgery; (f) need for guidance regarding long-term rehabilitation; (g) satisfaction with the medical services provided in the hospital; and (h) satisfaction with the treatment outcomes. CONCLUSION: Total en bloc sacrectomy can yield satisfactory oncological outcomes; however, the procedure is a life-changing event for patients and their families. Physicians must provide long-term support and guidance after surgery to enable patients to fully understand and cope with the changes in their lives.