Patient Experience of Living With Cancer‐Associated Thrombosis in Canada (PELICANADA)

作者：Simon Noble, Annmarie Nelson, Jill Scott, Anne Berger, Karen Schmidt, Parinita Swarnkar, Agnes Lee · 发表于：Research and Practice in Thrombosis and Haemostasis · 年份：2019 · DOI：10.1002/rth2.12274 · 被引用次数：38 · 研究领域：Venous Thromboembolism Diagnosis and Management、Chemotherapy-induced cardiotoxicity and mitigation、Hepatocellular Carcinoma Treatment and Prognosis

INTRODUCTION: Previous research from the United Kingdom and Spain has identified several areas of unmet clinical and support need for cancer patients diagnosed with venous thromboembolism. It is not known whether such experiences are restricted to those countries health care systems and culture. We therefore evaluated patients' experience of cancer-associated thrombosis (CAT) within a Canadian setting. METHODS: Purposive sampling of patients with CAT attending a regional thrombosis clinic in Vancouver was undertaken. Semistructured interviews were audio recorded, transcribed, and coded using NVivo software. A deductive approach was taken by applying the framework matrix from the original study to these data on a case-by-case basis. RESULTS: Twenty patients (10 male, 10 female) aged 39 to 74 (mean, 63) representing a breadth of different cancers participated. Commonalities between the UK and Canadian patients included the traumatic nature of experiencing CAT, the need for information, and adaptive behaviors through ritualization. Two new themes were identified: (1) Patients with incidental pulmonary emboli (iPE) were usually telephoned about their thrombus with little support and suboptimal communication; and (2) cost implications of accessing low-molecular-weight heparin varied according to insurance cover. Patients were sometimes converted to warfarin for financial reasons. CONCLUSION: The distress associated with CAT is a common experience across different populations but m...