Patient Experience of Thyroid Cancer Active Surveillance in Japan

作者：Louise Davies, Benjamin R. Roman, Mitsuhiro Fukushima, Yasuhiro Ito, Akira Miyauchi · 发表于：JAMA Otolaryngology–Head & Neck Surgery · 年份：2019 · DOI：10.1001/jamaoto.2018.4131 · 被引用次数：106 · 研究领域：Thyroid Cancer Diagnosis and Treatment、Global Cancer Incidence and Screening、Patient-Provider Communication in Healthcare

Importance: The burden of concern for patients with thyroid cancer who undergo surgical intervention with or without radioactive iodine is known to be substantial. For patients under active surveillance, this aspect of the patient experience has not been described to date and could be a potential barrier to broader acceptance of surveillance as a cancer management strategy. Objective: To describe the experiences of patients in the longest-standing and largest thyroid cancer active surveillance program. Design, Setting, and Participants: This study used a mixed method of survey, semistructured interviews, and field observation and was conducted at Kuma Hospital in Kobe, Japan. The survey was administered from September 4, 2017, through October 18, 2017, and the field observation was conducted from August 28, 2017, to October 20, 2017. Survey participants were a consecutive sample of 249 patients under active surveillance who were attending the hospital for a surveillance visit, and the semistructured interviewees were a subset of 21 patients. The English-language survey instrument was translated by native Japanese speakers, back-translated into English, and then further refined by a panel of Japanese speakers with expertise in health research. Main Outcomes and Measures: Survey and interview responses and field observations. Results: In total, 249 surveys were distributed to patients with thyroid cancer on active surveillance. Two hundred forty-three patients (97.6%) completed...