A systematic review of questionnaires about patient’s values and preferences in clinical practice guidelines

作者：Fei Bai, Juan Ling, Gloria Esoimeme, Liang Yao, Mingxia Wang, Jiajun Huang, Anchen Shi, Zehui Cao, Yaolong Chen, Jinhui Tian, Xiaoqin Wang, Kehu Yang · 发表于：Patient Preference and Adherence · 年份：2018 · DOI：10.2147/ppa.s177540 · 被引用次数：15 · 研究领域：Clinical practice guidelines implementation、Patient-Provider Communication in Healthcare、Health Systems, Economic Evaluations, Quality of Life

OBJECTIVE: We conducted a systematic review to evaluate questionnaires about patient's values and preferences to provide information on the most appropriate questionnaires to be used when developing clinical practice guidelines. METHODS: A systematic literature search of the Cochrane Library, MEDLINE, Embase, Web of Science, Chinese Biomedical Database, China National Knowledge Infrastructure, and the Wanfang Database was performed to identify studies on questionnaires evaluating patient's values and preferences. The articles that used fully structured questionnaires or scales with standardized questions and answer options were included. We assessed the questionnaires' construction and content with a psychometric methodology and summarized the domains and items about patient's preferences and values. RESULTS: A total of 7,008 records were retrieved by the search strategy and scanned, and 20 articles were finally included. Of these, 10 (50%) articles described the process of item generation and only four questionnaires (20%, 4/20) mentioned the pilot testing. Regarding "validity", seven questionnaires (35%, 7/20) assessed validity and only one (5%, 1/20) questionnaire assessed internal consistency, with Cornbrash's α values of 0.74-0.87. For "acceptability", the time to complete the questionnaires ranged from 10 to 30 minutes and only nine studies (45%, 9/20) reported the response rates. In addition, the results of domains and items about patient's preferences and values showe...