Perceived social support and quality of life of parents of children with Autism

作者：N Kuru, Birgül Piyal · 发表于：Nigerian Journal of Clinical Practice · 年份：2018 · DOI：10.4103/njcp.njcp_13_18 · 被引用次数：90 · 研究领域：Family and Disability Support Research、Disability Rights and Representation、Inclusion and Disability in Education and Sport

BACKGROUND: When examining the incidence of autism, however, children should not be considered independent of their parents, as this collection of disorders also affects the life of their family members. Having a disabled child affects the relationships with the family and friends, and the social and work life of families. The quality of life of these families is discussed in terms of financial aspects, health, support of family members, values, occupation, family relations, and individual support dimensions of developmental disabilities. However, there are very limited studies on the relationship between perceived social support and quality of life of parents of children with autism, and none of these has been conducted in Turkey. AIM: This study aimed to identify the perceived social support and quality of life of the parents of children with autism and to investigate the related factors. STUDY DESIGN: The sample of the study consists of 90 parents who accepted to join the research studies. The participants enrolled in the study included 90 biological parents (31 mothers; 59 fathers). Eighteen children had both mother and father participate (all participants subsequently will be referred to as "parents"). METHODS: This was a descriptive cross-sectional study. A socio-demographic form, the EUROHIS Quality of Life Scale (EUROHIS QOL-8) and the Multi-Dimensional Scale of Perceived Social Support (MSPSS) were used for data collection. RESULTS: The mean score on the EUROHIS QOL-...