Linking Swedish health data registers to establish a research database and a shared decision-making tool in hip replacement

作者：Peter Herman Johan Cnudde, Ola Rolfson, Szilárd Nemes, Johan Kärrholm, Clas Rehnberg, Cecilia Rogmark, John A. Timperley, Göran Garellick · 发表于：BMC Musculoskeletal Disorders · 年份：2016 · DOI：10.1186/s12891-016-1262-x · 被引用次数：33 · 研究领域：Total Knee Arthroplasty Outcomes、Orthopaedic implants and arthroplasty、Health Policy Implementation Science

BACKGROUND: Sweden offers a unique opportunity to researchers to construct comprehensive databases that encompass a wide variety of healthcare related data. Statistics Sweden and the National Board of Health and Welfare collect individual level data for all Swedish residents that ranges from medical diagnoses to socioeconomic information. In addition to the information collected by governmental agencies the medical profession has initiated nationwide Quality Registers that collect data on specific diagnoses and interventions. The Quality Registers analyze activity within healthcare institutions, with the aims of improving clinical care and fostering clinical research. MAIN BODY: The Swedish Hip Arthroplasty Register (SHAR) has been collecting data since 1979. Joint replacement in general and hip replacement in particular is considered a success story with low mortality and complication rate. It is credited to the pioneering work of the SHAR that the revision rate following hip replacement surgery in Sweden is amongst the lowest in the world. This has been accomplished by the diligent follow-up of patients with feedback of outcomes to the providers of the healthcare along with post market surveillance of individual implant performance. During its existence SHAR has experienced a constant organic growth. One major development was the introduction of the Patient Reported Outcome Measures program, giving a voice to the patients in healthcare performance evaluation. The next aim f...