Evaluation of electronic patient-reported outcome assessment with cancer patients in the hospital and at home

作者：Lisa Maria Wintner, Johannes Maria Giesinger, August Felix Zabernigg, Gerhard Rumpold, M. Sztankay, Anne Oberguggenberger, Eva‐Maria Gamper, Bernhard Holzner · 发表于：BMC Medical Informatics and Decision Making · 年份：2015 · DOI：10.1186/s12911-015-0230-y · 被引用次数：69 · 研究领域：Cancer survivorship and care、Economic and Financial Impacts of Cancer、Patient-Provider Communication in Healthcare

BACKGROUND: Patient-reported outcomes (PRO) provide a more comprehensive picture of patients' quality of life than do mere physicians' ratings. Electronic data collection of PRO offers several advantages and allows assessments at patients' homes as well. This study reports on patients' personal internet use, their attitudes towards electronic and web-based PRO assessment (clinic-ePRO and home-ePRO) and the feasibility of these two assessment modes. METHODS: At the Medical University of Innsbruck and Kufstein County Hospital, cancer patients who participated in clinic-ePRO/home-ePRO were asked to complete a comprehensive evaluation form on their personal internet usage, attitudes towards and the feasibility of routine clinic-ePRO/home-ePRO with the Computer-based Health Evaluation System (CHES) software. RESULTS: In total, 113 patients completed the evaluation form for clinic-ePRO (Ø 45 years, SD 14) and 45 patients for home-ePRO (Ø 58 years, SD 10; 33.1 per cent inclusion rate for this sample). Most patients expressed willingness to complete routine clinic-ePRO assessments in the future (94.7 per cent of clinic-ePRO patients and 84.4 per cent of home-ePRO patients) and to discuss their data with attending physicians (82.2 per cent, home-ePRO patients only). Overall, patients preferred the software over paper-pencil questionnaires (67.2 per cent of clinic-ePRO patients and 60 per cent of home-ePRO patients) and experienced it as easy to use. Only a few minor suggestions for im...