“You’re too young for this”: Adolescent and Young Adults’ Perspectives on Cancer Survivorship

作者：Erin Elizabeth Kent, Carla Parry, Michael J. Montoya, Leonard S. Sender, Rebecca A. Morris, Hoda Anton‐Culver · 发表于：Journal of Psychosocial Oncology · 年份：2012 · DOI：10.1080/07347332.2011.644396 · 被引用次数：162 · 研究领域：Childhood Cancer Survivors' Quality of Life、Family Support in Illness、Adolescent and Pediatric Healthcare

Adolescent and young adult cancer survivors face unique challenges not systematically addressed by cancer clinicians. Four focus groups and two individual interviews were conducted with 19 survivors to profile experiences and identify key concerns for future interventions. The resultant themes reflect cancer care continuum challenges (such as delays in diagnosis, problems with adherence), psychosocial concerns (such as infertility and reproductive concerns, changing social relationships, financial burden), and the paradox of being diagnosed with cancer as a young adult. Future intervention development for adolescent and young adult survivors should involve patient voices at each stage of the research process.