The extended arm of health professionals? Relatives' experiences of patient's recovery in a fast‐track programme

作者：Annelise Norlyk, Bente Martinsen · 发表于：Journal of Advanced Nursing · 年份：2012 · DOI：10.1111/jan.12034 · 被引用次数：50 · 研究领域：Cancer survivorship and care、Enhanced Recovery After Surgery、Palliative Care and End-of-Life Issues

AIM: To report a study of the lived experience of being a close relative to a patient with colon cancer participating in a fast-track programme. BACKGROUND: Studies have documented that postoperative recovery can be accelerated and that hospitalization can be reduced through fast-track programmes. Due to the early discharge and the increasing demands on patients for self-care, patients' relatives seem to play a pivotal role in fast-track programmes. However, research is limited into how patients' close relatives are affected by and involved in the postoperative recovery process. DESIGN: A descriptive phenomenological approach using Reflective Lifeworld Research. METHODS: The study was carried out within the descriptive phenomenological framework of Reflective Lifeworld Research. Data were collected in 2008 from in-depth interviews with twelve relatives. FINDINGS: Relatives experienced a huge responsibility for both the patient's well-being and for the patient's compliance with the daily regimen. Relatives were caught in a conflicting double role. They were the extended arm of the health professionals but also the caring, supporting partner. A tension arose between relatives' desire to help the patient by taking an active part in the recovery process and the feelings of not always having the resources needed. CONCLUSION: Relatives seem to suffer in silence as they bear the burden of the patient's diagnosis, the disruption of life, and the taken-for-granted responsibility for t...