Perceived Needs of Families with Children who Have Chronic Health Conditions

作者：Deborah Klein Walker, Susan G. Epstein, A Taylor, Allen C. Crocker, Gerald A. Tuttle · 发表于：Children s Health Care · 年份：1989 · DOI：10.1207/s15326888chc1804_1 · 被引用次数：50 · 研究领域：Child and Adolescent Health、Adolescent and Pediatric Healthcare、Family and Disability Support Research

Parents of children with a wide variety of chronic health conditions (N = 910) were surveyed about their use of health services, out-of-pocket expenses for health care and related items, and ratings of the importance of health and support services. The financial burden on this middle-class, insured sample was substantial, with about half indicating some out-of-pocket expenses for travel, parking fees, drugs and medication, bills after insurance payments, and doctor charges. The commonalities found in parents' reporting of important services needed support the use of a noncategorical approach to program planning and policy development for children with special health care needs.